When our founder and CEO, Ed Randall, was first diagnosed with prostate cancer in 2002, he quickly recognized that he knew next to nothing about a disease that was affecting millions of men in his age group every year worldwide. Conversations with men that followed his diagnosis made him realize that practically everyone he spoke to – both men and women – knew little about a disease that is the second-leading cause of cancer deaths in men (behind only lung cancer). Ed set out to address this education and awareness gap by organizing a charity that would educate men and their families about the prevalence of prostate cancer and the connection among early detection, less invasive treatment options, and best outcomes.
An Online Resource for Reliable Information and Prostate Cancer Awareness Education
At Fans for the Cure we have committed ourselves to making our website an online resource for men, their families and their support network to find reliable, up-to-date information about prostate cancer testing and state-of-the-art treatment. As treatment programs have migrated over the past 10-15 years away from primarily radical and invasive procedures to an emphasis on active surveillance combined with more frequent PSA tests, our online resources have been updated to link with articles and healthcare institutions’ websites that reflect best practices in treatment plans.
In early 2016, we completely redesigned and rebuilt our website to make it mobile-friendly and to provide an improved user experience overall. Since then, we have been steadily adding relevant and important content to our website. We’re working closely with our Medical Advisory Board and our partners to build a robust online library of information, materials and resources that will help men across the country educate themselves about prostate cancer, inform them where and how to get tested for it, and suggest the best accepted medical interventions for its treatment.
Bringing Prostate Cancer Information to Men in their Communities
It has been our finding that men often need to be pushed and motivated to proactively monitor and manage their health. Our experience has been that this is especially true when it comes to seeking out and managing prostate cancer testing and treatment. To address that need, we work actively to put ourselves in front of gatherings that include men of all walks of life in order to share what we know about the vital importance of prostate cancer screening and testing.
As an organization, our roots reside in baseball. Our first community events and fundraisers were pick-up games of softball that were held in December in Coney Island. We have since carried our messages further afield through our annual Summer Road Trip and other efforts that have sought to make inroads within communities.
We also organize events that are likely to draw in men as attendees, and then use those events to share information about managing health issues in general. For example, in 2016, we hosted a panel of baseball legends and medical experts to discuss overuse and workload among young pitchers in their teens and early 20’s, the causes of arm injuries and the prevalence of Tommy John surgery among young men in this age group.
Understanding that each man’s journey through prostate cancer is a unique and personal story, we have brought together recently diagnosed men to hear from prostate cancer survivors. These typically more intimate gatherings provide men with the opportunity to candidly share their questions and concerns – while also becoming more aware of medically proven and up-to-date about prostate cancer testing and treatment options.